On the bright side, there is ample evidence that, in the modern era, life-expectancy is not shortened for individuals with BAV compared to the general population. In patients needing valve replacement because of stenosis or regurgitation, the aorta should be repaired or replaced if the aortic diameter exceeds 4.5 cm. I realize that appointment availability for medical specialistsin your case, the pediatric cardiologistcan be tight. Replacement is much, much more common. Thanks for sharing an update. 1. Thank you for the follow-up! We just saw the cardiologist in July and again same symptoms and no significant cardiac changes . Approximately 1%-2% of the population are born with an aortic valve that only has two cusps. Jeff/Doc, There are many causes of light-headedness and chest discomfort that are not related to the heart. When Ive had patients in your situation, Ive usually recommended getting the screening when its CONVENIENT. Search for heart hospitals that specialize in heart valve treatment. lessons) To much info to much detail so much information and advice. All rights reserved. That is someones life.. Finally, many patients are able to return to their sports after successful operation. Bicuspid aortic valve (BAV) is a heart problem present at birth and the most common congenital cardiac anomaly, with an estimated incidence of 0.5 percent to percent in the general population. May 10, 2010, 4:50 PM. Im 32 years old and back in 09 I discovered I have a BAV. I have a call in to his doctor but what do you think? 1) What kind of sports are recommend to me according to my situation? A bicuspid aortic valve (BAV) is the most common congenital heart defect, occurring in approximately 1%-2% of the general population. Im not sure I have all the answers from afar. Baton Rouge, Louisiana 70808. However, my problem is that if I can train at this pace then I can still run but I certainly cant compete! Im a 57 year old male who had aorta repair and porcine valve surgery 3 years ago. I was physically examined by a medical board at new Delhi for the post of a chemist in geological servey of India but they declared me unfit as I have BAV . 2) He can lead a normal life & can continue his training with regular echocardiography control (once in a year). It will also be necessary to keep a close eye on the size of the aorta over time, using echocardiography and CT. That post is a starting point for todays discussion. The typical symptoms are fatigue or shortness of breath, particularly with exertion. Im 37 years old male, live in Croatia, 191 cm, 94 kg, very athletic, practicing various sports my whole lifetime. For athletes who return to sport after AVR and aortic replacement, its important to settle on whats safe with your doctor(s) ahead of time. Yes, as the patient grows, so will the aorta.and eventually you get to the traditional >40 mm cutoff where activity restrictions are advised. This can be a life-threatening problem and is more apt to occur with progressive enlargement of the aorta and with uncontrolled high blood pressure. Use or viewing of any Baldwin Publishing, Inc. article signifies your understanding and agreement to the disclaimer and acceptance of these terms of use. I was training for 11th marathon at the time (over the past 13 years). There are simply no reports that describe the experience of athletes returning to ECer ise (or training) after aortic dissection. A bicuspid aortic valve is a congenital condition, meaning that people are born with two rather than the normal three cusps on their aortic valve. I just need to know if these sports are a possibility (im pretty sure football is a no given its contact nature). Im obviously quite anxious that Ill drop death! Enlarged ascending aorta 42-43 mm (Yes, I have been going for regular check-up since in was about 7 years old. Every 6 months it is getting larger. Thanks for the very insightful post, and for taking the time to reply to everyone here. Hi Dr. Creswell. with valve area of 1.4 cm2 and aorta of 4.1 cms His only complaint or change is shortness of breath with stairs. 1. In some cases, bicuspid aortic valve causes another condition called aortic valve stenosis. Exercise and sports are usually safe if there is mild aortic root enlargement but no other heart or vascular problems. Dear Doctor, The more common form of bicuspid aortic valve occurs in a valve with three cusps with . There is not much scientific evidence about what to expect. If the conflicting opinions both come from cardiologists, you should ask them to confer with each other and arrive at some sort of consensus. He is certainly expert in the area of drug therapy to reduce the rate of aortic enlargement. Again, this is a topic that is not yet well-researched. 2.
Bicuspid aortic valve - Overview - Mayo Clinic All Rights Reserved. I take bisoprolol (low dose) and my pressure is currently normal . Since Im very active in sports, Id like to have your opinion on it. Weve known the risks and my daughter has done well to avoid scrapping for the ball etc. I had a cardio version to correct the AFIB. Either way I often think my cardiologist looks at me as if Im nuts and that my current 175 miles a week training should be thought of as beyond expectations post open heart surgery. Would this have any affect on any of the results of the tests I have done (Echo, EKG, Chest Xray)? Thank you very much for writing such a thorough and well informed article. My performance as a cyclistgiven my ageputs me in the elite category, although with the stenosis I am experiencing a definite decline in performance. Do we have a choice with him only being 15??? I am a 36 yo male who was first diagnosed with BAV at the age of 17. Thank you so much for your reply. I get sporatic tingling in my left hand and footand every so often in my left cheek bone. Its a lot harder in the UK to see your cardiologist so you cant get the answers quickly. Its not around incision, its mainly middle of left side. In late March, Schwarzenegger was heavily involved in a chess tournament with his donkey Lulu. Who Qualifies for TAVR. It might be wise to have discussion with your doctor about the particular activities youre concerned about. Since I started running, I lost about 8 kg, my blood pressure decreased from 140/90 to 120/80-70. In your experience how long are we talking before I have to have surgery and do beta blockers really help in prolonging the need for surgery. Perhaps meeting with a heart surgeon now, even if operation is not yet needed, might provide a forum for discussion about the options for surgery, the technical issues, and recovery. Normal function of cardiac valves I am a 60 yo female who has been active my whole life. Am I crazy? Aortic stenosis will limit athletic performance at the top end. Although we still dont have very long term results tracked (15+ years), in the short term the results seem to be much superior to regular bentall de bono option (and its variations). My son is devastated, depressed, and wanted to play ball in college. I played competitive amateur football (soccer) on Saturday and Sunday from age 16. The free weights are about 10kg and Im not doing any really heavy weights. I appreciate your response, thank you for taking the time to write me back. Hi Dr Creswell, If 5% of them dissect, this means 313,914 people. "I am lucky to be here.". Thus far shes had only minor bruising (shes 6ft and has a solid build). I have been given no restriction to date in any physical exercise as my valve is in decent condition. Business, Economics, and Finance. Im not familiar with employment eligibility issues with BAV, even in this country. The procedure has the potential to bring the aorta to 4.3/4.4 and avoid further enlargement. Celebrity. My son was diagnosed with BAV, by chance, when he was 7. Ive done so much research and there are lots of young people who have went on to play sports and lead normal lifes. The heart has a difficult time coping with extra demands of exercise. Ordinarily, athlete patients with mild degrees of valve regurgitation can continue to participate in their sports. OPTIMUM HEALTH, INC The best source of recommendations about safety of various forms of exercise will come from your doctor(s) who are familiar with all the particulars of your circumstance. Bicuspid valve stenosis treatment involves surgery to replace the valve. The rest of the aorta is normal (visualized to just above the bifurcation in the abdomen). Apparently this can work better than Losartan? Very much appreciate this site, thanks Larry for giving people like us a place to voice our concerns ! Mild/moderate regurgitation. Youve got the right idea, though. Best for athletes like you to have a discussion with their doctor(s) and settle on a defined, mutually acceptable course of action about which sports activities are safe. Please refer to this article if not: https://academic.oup.com/ejcts/article/50/3/400/2197426. Last echo measurements LDid 6.3cm z-score 2.4, LVIDs 4.1 cm z-score 2.0, LVPWd 1.2cm z-score 1.9, asc aorta Diam 4.0 cm z-score 5.8. Kimberly has experienced heart valve disease firsthand. Rest pulse (70 bpm|50 bpm) In large-scale pre-participation cardiac screening programs for young, competitive athletes, BAV is one of the most commonly identified abnormalities. By clicking Accept All Cookies, you agree to the storing of cookies on your device to enhance site navigation, analyze site usage, and assist in our marketing efforts. Celebrities with congenital heart disease Details Published: January 27 2016 . This is amplified when I sit with my feet up (male cross-legged) because of the tingling/numbness in feet.
Arnold Schwarzenegger Test Drives New Aortic Valve on Cleveland Is that so, or can it be measured by the echocardiogram as well? Aortic replacement. Here is a link to a diagram that categorizes sports according to their dynamic and static components: http://www.athletesheart.org/wp-content/uploads/2013/12/Classification-of-Sports-300217.png. Measurements of aortic diameter can be made with echocardiogram. these conditions occur mostly during my exercises at the gym and Im left very lightheaded and shortness of breathe. Im a 51 year old male who had aortic repair (5.8 cm) and bovine valve replacement AVR surgery 2 years ago. I have had three annual Echocardigrams, the first two showed mild stenosis, mild LV thickening. While it was anticipated that a minimally invasive, transcather device would be used during the procedure, a surgical valve was ultimately used during an open-heart procedure using a median sternotomy. I have found out I have a BAV last year. Have completed an excercise stress test and signed off as ok on reaching level 13. I have normal aortic size, mildly dilated aortic sinus (39 cm), and trace aortic regurg. His aorta is lightly enlarged.
Young Patient Feeling 'Supercharged' After Bicuspid Aortic Valve Surgery Ive got my results from my recent echo and a lot of normals on there but main things were regurgitation and stenosis were mild with the aorta measuring about 33mm. I am 46 years old today, 22x marathoner, 4x Ultra (50 miles) and 5x natural fitness competitor. I asked my surgeon and also the echocardiographist about my sports performance after full recovery, about 6 months after the surgery. Im 52 years old and had surgery 2.5 years ago to repair an ascending aortic aneurysm (5.8 cm) and aortic tissue valve replacement. During that first month we recommend ample walking as the best form of exercise. The cardiologist told us at that appointment that we needed to start considering surgery to repair his valve. Did the heart have to work harder to compensate? She partnered with the American Heart Association to encourage others to get CPR training that could potentially be life-saving. And now my aortic root is 42 mm. This is the way I can help. How are you? however I have been getting pain (on the left side of my breast) and chest pain due to lack of oxygen. Website designed by Gatorworks. Thanks for the enlightening article. He will be rechecked with an echo, BNP blood test & MRI every 6 months. Thanks! I took it up 7 years ago. I do think that this condition can weigh heavily on patients minds, though, and in your case perhaps particularly so because of the experience of your mother. Almost half of BAV subjects develop different degrees of valvular dysfunction during their lifetime. Tachcardaia beetwen echo due that doctor couldent see clearly. A normal aortic valve looks like the Mercedes logo, a circle broken up by three lines that meet in the middle. I used to run a lot. This is true at rest and may be even more so during exercise. Open heart surgery is sometimes the best option, but it is not always the only option. A different set of. Perhaps you could organize such a visit for a 2nd opinion regarding safe levels of exercise? Also twice a week I try to do 40-minute workouts like planks, pushups and so on (with my bodyweight). The worse the narrowing, the greater will be the difference in blood pressure between the arms and the legs. Schwarzenegger was born with a condition known as bicuspid aortic valve, in which the heart's main artery, the aorta, has only two cusps instead of three. 2; I would think that moderate would be a good term for 8-12 rep range, pullups (unassisted), and pushups. Nwankwo Kanu (@papilokanu), the Olympic Gold Medalist (Soccer) suffered from Aortic Valve Defect. September 13, 2017 1:00 PM. The singer co-founded the Womens Heart Alliance, which works to raise awareness and funds research to fight womens heart disease. Great article! Thanks, Thank you for nice article. Like you, I have been frustrated by the lack of experience and information that the cardiology community has for folks like us, although it is encouraging to read everyones posts here and see that we are not alone. Because it was just a cardiologist, not a sports cardiologist or physiotherapist. Aortic stenosis has been reported to occur in as many as 72 percent of adults with a congenital bicuspid aortic valve, with peak incidence occurring in the 5th and 6th decades of life. I have no symptoms that I would notice, e.g. Should I stop jiu-jitsu as it is a mix of anaerobic exercise (which I hear is bad) and aerobic exercise (which I hear is good)? Thank you for your time. Although bicuspid aortic valves can occur . I am a 23 year old male, have BAV with mild AR. I didnt get it.". People can live normal lives with Congenital Heart Defects. 27yr old male. In some cases, the aortic valve can be repaired and the enlarged aorta can be replaced with a Dacron tube. triangle chokes, other blood chokes) could be putting pressure on my heart and cause my aorta diameter to increase? The only question I have is in regards to having my children screened. His favorite sports are football and baseball. For example, his spurt in enlargement happens to coincide with his spurt in growth. Any guidelines? Down side: must take blood thinners to prevent blood clots from forming on mechanical valve. 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Sometimes my cardiologist says there is minimal change and he thinks my aorta had slightly enlarged by 1-2mm.
Echo Features of a Bicuspid Aortic Valve | 123 Sonography Could you express your opinion on this issue? TAVR is a relTively new technology where a new heart valve, shrunk onto a catheter, can be threaded through the bloodstream (usually through a leg artery) to where your current valve sits.and then expanded inside the current valve, pushing it aside. Barb. Most people require treatment once symptoms develop. I get the fact that lifting excessively can cause a spike in blood pressure, but only under certain conditions (i.e. Im not surprised that youve received a conservative recommendation about exercise. I dont know all of the important details. Do you opration? I have been doing as much research as possible on what are the advantages/disadvantages of each replacement. Even if its one person I help. No other issues. Problem is, Im getting older (52) now and Im wondering the effect age, and should I be asking for more frequent followups. Enjoy! Thank you to every doc and nurse on my team.". I am an amateur runner, I do not participate in competitions. I had AVR exactly 1 year ago to the date. Up until this time shes played volleyball, basketball and has even run track in elementary. Garth was already familiar with heart diease before her diagnosis because it runs in her family. I dont know what to do .. What have I observed and learned in the quarter century since? I am also in grey zone waiting for surgery. From your reading, or even just here at the blog, youll know that its not an unusual story. Best to continue to work towards identifying cause(s) and getting any needed treatment. Seven months ago I had emergency AVR due to a BAV that was severely compromised by endocarditis. Other heart parameters are very good (no bigger chamber or aorta). Consensus guidelines from the Proceedings of the 36th Bethesda Conference recommend: The first recommendation does not include the endurance sports. If youre questioning the recommendations youve received, perhaps a second opinion might be helpful. Im a 30 yr old male, training 5 times a week rowing and strength training. Hey would like to continue to be active but is worried about which procedure would be best for him. My cardiologist is not concerned. March 10, 2016 at 1:50 pm. which seems to suggest that he has returned successfully to the sport. I have almost everyday all day shortness of breath which follows with chest pain and discomfort. I have found in my case( an athlete with bav)the typical response from doctors is, thats life, you cant do it anymore, be grateful for what you have. I certainly know of athletes who return to all forms of endurance sport as well as weight-lifting after operations like yours. You are correct that we worry about the influence of such activities on the enlarged aorta in those with BAV. Hi Larry, Keep us posted! Many athletes with bicuspid aortic valve (BAV) may continue to participate in their sports.provided there are no other problems, either with the aortic valve or nearby aorta. My biggest concern is whether I will be able to return to my previous level of physical activity and level of fitness. In addition to being patients, there are many celebrities who, like you, parent a child with CHD as well. Bicuspid aortic valve with Marfan and other HTAD when the ascending aorta is dilated >45 mm. What does heavy weights mean?
Young actor receives groundbreaking aortic valve repair This blog helped me a lot in my panic days, it put me at ease when I was worrying to much, just to see and to know your enemy and to realize that you are not alone is great help. I am followed every 2 years. 4.2cm dilated aortic root Your surgeon will be in a good position to understand the exact details of operation that might be relevant when deciding whats safe.. He left it pretty vague. Thank you! I was disappointed [when I was diagnosed]. A CT scan made the diagnosis. Would this constitute as too much in your opinion ? Aortic stenosis and bicuspid aortic valve (BAV) I cant thank you enough for your responses to all the above questions. The average lifespan for a cow valve or pig valve is about 10 to 15 years, according to the Cleveland Clinic. Contact Editor. Im 31 and 1 years ago i found im BAV with modrate AI. Last week I visited a doctor and here are the changes for the last year (before|after): We just dont know. His whirlwind romance with Katherine Schwarzenegger has resulted in a rather large ring on her finger. Only your cardiologist and heart surgeon will be in a position to make those considerations.
Celebrities Who Have Opened Up About Heart Health - Peoplemag Thank you so much! I would really like for people to not have to experience what I had to experience, she continued. I am wondering because I know that weighlifting with bav isnt so good I feel terrible because i lov weightlifting and I have build a body that is so difficult for a 18 years old.
Barbara Walters Prepares for Heart Surgery - ABC News Frequency of congenitally bicuspid aortic valves in patients 80 years of age undergoing aortic valve replacement for aortic stenosis (with or without aortic regurgitation) and implications for transcatheter aortic valve implantation.Am J Cardiol. Patients with BAV who have a normal size aorta, with no stenosis or regurgitation of the aortic valve, can participate in sports without restriction. Your doctors will be in the best position to offer advice because they will be most familiar with your case. This is an unfortunate situation for the athlete patient because the consensus guidelines do not yet recommend operation, yet advise against strenuous sports activities. To save nice heart the best would be doing nothing (! The BAV is monitored annually, the doctor told me that Im currently in the grey zone but stable since I started the monitoring. 2 Such features need to be considered before surgical intervention. The most common type was type 1 (1 raphe with the raphe positioned between the right and left coronary sinuses (75%), while the second most common type was also type 1 . And any valve substitute (with valve replacement) is clearly not as efficienteven if the substitute is better than a diseased valve. Also hypertension in both arms. Ordinarily, we reserve operation for patients with severe aortic regurgitation who have some decrement in the LV function. It is two to three times more common in males than in females. All aorta is normal, valvula normal funkcion only sinus valsava 35-37mm. The lines are the edges of the valve leaflets that open and close to let blood through. My problem is with cardiologists stating do not lift anything over 50lbs. Arnold Schwarzenegger was born with a bicuspid aortic valve, in which the aortic valve has only two leaflets, instead of the typical three. Theres no reason to not be CPR certified.. After the scans, ultrasounds, stress tests and TOE, I was diagnosed with BAV with no Stenosis, no Aortopathy and no evidence of Coarct and normal LV size and function. ), Your email address will not be published.
Good TAVI Results Seen in Bicuspid Aortic Stenosis: TVT Registry - TCTMD There has been a slight increase in the measurements over the last several years, but I am still below the threshold which would require surgical intervention. Again, thank you and bless you for taking the time to talk with us here! Do you have a congenital heart defect? Get on with it. I have ramped up my walking to 30 minutes, keeping my heart rate under 100 bpm.
Living fearlessly with bicuspid aortic valve disease Im just going to do my very best to stay the course and have annual echoes to track my valve.
Celebrities With Endocarditis -- Know Of Any? - Heart Valve Surgery Anyway, it has slowed to 1 mm per year, and, via email, Dr. Dietz has suggested we may consider a switch to 300 mg Libersartan? Having a congenital heart defect means you are born with a problem with the heart's structure. Palace Insiders Say Prince William Is Already Furious About Prince Harrys Memoir Leaks, Prince Harry alleges Prince William attacked him over Meghan Markle in a new excerpt from, Scene Stealer: The True Lies of Elisabeth Finch, Part 1, Rupert Murdoch Knees Trump in the Balls While Hes Doubled Over Coughing Up Blood, By BG017/Bauer-Griffin/GC Images/Getty Images. She said it could still be 6 months to a year just depending on if there are any more changes to this next echo. A HR limit of 120 will be tough, I would guess. Your sons doctors are undoubtedly experts at pediatric patients. Thank you for your ideas and I apologize for my gramma errors (English is not my first language). The incidence of normally functioning bicuspid aortic valves is 0.6% to 0.9%.5 . I have been advised not to run any more marathons or half-marathons, but that I can still compete at up to 10km races. With so many similar stories, do you know why there is not more statistical data or studies done with regards to sports and BAV and changes in aortic diameter? 3. I have a 15 year old son with a BAV, Aortic stenosis, Noderate regurgitation and dilatation of his ascending aorta. Does the (unreplaced) aorta enlarge over time? My problem is a perpetual fear and worry about having this diagnosis and having to someday undergo open heart surgery.